Ciitizen Community

Ciitizen believes change will be driven by the individual alongside the organizations who tirelessly support and advocate for them. We are proud to partner with a network of Patient Advocacy Organizations who believe in the power of patients to drive change. 

It takes an entire community to cure the world’s worst diseases, and that starts with enabling everyone to access and control their medical records.

Meet our Partners

Cholangiocarcinoma Foundation (CCF)

The Cholangiocarcinoma Foundation’s (CCF) mission is to find a cure and improve the quality of life for those affected by cholangiocarcinoma (bile duct cancer). Founded in 2006, CCF has grown to become the leading global resource in research, education, and public awareness for cholangiocarcinoma.

FB: @cholangiocarcinoma
Twitter: @curecc
IG: @cholangiocarcinoma
Website: cholangiocarcinoma.org

Male Breast Cancer Coalition (MBCC)

The Male Breast Cancer Coalition is on a mission to build awareness through the wisdom and experiences of survivors that breast cancer does not discriminate and that “Men Have Breasts too.” Together, the brotherhood is out to end the stigma and feelings of abandonment associated with a male breast cancer diagnosis.

FB: @MaleBreastCancerCoalition
Twitter: @MBCC_MHBT
Website: malebreastcancercoalition.org

Metaplastic Breast Cancer Global Alliance

The Metaplastic Breast Cancer Global Alliance, Inc. is a nonprofit organization founded and administered by volunteers and supported by noted researchers and oncologists. The mission of this alliance is to help consolidate knowledge and support research into the rare subtype of Metaplastic Carcinoma of the breast.

FB: @MetaplasticBreastCancerGlobal
Twitter: @MpBCGA_USWest
Website: mpbcalliance.org

Morehouse School of Medicine

The mission of the Morehouse School of Medicine is to improve the health and well-being of individuals and communities, increase the diversity of the the health professional and scientific workforce and address primary health care through programs in education, research and service. All with an emphasis on people of color and the underserved urban and rural population in Georgia, the nation and the word.

FB: @MorehouseSchoolofMedicine
Twitter: @MSMEDU
IG: @morehouseschoolofmedicine
Website: msm.edu

Touch, the Black Breast Cancer Alliance

Touch, The Black Breast Cancer Alliance will drive the collaborative efforts of patients, survivors, advocates, advocacy organizations, health care professionals, researchers and pharmaceutical companies to work collectively, with accountability, towards the common goal of eradicating Black Breast Cancer.

FB: @TouchBBCA
Twitter: @touchbbca
IG: @touchbbca
Website: touchbbca-org.constantcontactsites.com

Breastcancer.org

Breastcancer.org’s mission is to help people make sense of the complex medical and personal information about breast health and breast cancer, so they can make the best decisions for their lives. Founded in 2000, Breastcancer.org is the leading patient-focused resource for breast health and breast cancer information and support. They engage, educate, and empower people with their expert information and dynamic peer support community to help patients make the best decisions for their lives.

FB: @breastcancerorg
Twitter: @Breastcancerorg
IG: @breastcancerorg
Website: breastcancer.org

Triage Cancer

Triage Cancer is a national, nonprofit organization that provides education on the practical and legal issues that may impact individuals diagnosed with cancer and their caregivers, through events, quick guides, and cancer resources.

FB: @TriageCancer
Twitter: @TriageCancer
IG: @triagecancer
Website: triagecancer.org

Rett Syndrome Research Trust (RSRT)

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world’s premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

FB: @RettSyndromeResearchTrust
Twitter: @RSRT
IG: @rsrtig
Website: reverserett.org

United Mitochondrial Disease Foundation (UMDF)

To promote research and education for the diagnosis, treatment, and cure of mitochondrial disorders and to provide support to affected individuals and families.

FB: @theUMDF
Twitter: @UMDF
IG: @umdf
Website: umdf.org

Community Advisors

Michael Singer​

Michael is a Bronx native and an early stage male breast cancer thriver. He is a lead advocate for the Male Breast Cancer Coalition and has been instrumental in patient, research and policy advocacy since his diagnosis in 2010.​

Kelly Shanahan​

Kelly is a mother, wife, daughter and physician diagnosed with early stage breast cancer in 2008. She has been an active patient, policy and research advocate living with metastatic breast cancer since 2013.​

Featured Ciitizen Health Data Rights Ambassadors

Susan Strong

Susan is a two-time cancer warrior, diagnosed over 35 years ago with Hodgkin's Lymphoma and diagnosed in 2017 with breast cancer. She is an active advocate for research into late and long term effects of treatment.

Marianne Sarchich

Marianne is the founder of a 500+ person online support community. While she was diagnosed with early stage breast cancer in 2016, she is a staunch supporter of the metastatic community via her support for Metavivor.