Blog

Better Coordinated Care

In our last epic post, our CEO Anil cited a somewhat surprising development from a recent Politico article: the falling cost of Medicare’s spending per patient. Politico actually has an entire section devoted to the future of Medicare that explores where America’s largest single purchaser of health care could be...

Your Health Data Rights

Before I came to work at Ciitizen, I was the Deputy Director for Health Information Privacy at the HHS Office for Civil Rights, which is the office that oversees the Health Insurance Portability and Accountability Act (HIPAA) privacy, security and breach notification regulations. When you’re a privacy nerd like me,...

Ikigai: A Reason for Being

In late 2011, my father was diagnosed with late stage multiple myeloma. Thus marked the beginning of a long, two year battle-not only against cancer but to reclaim human dignity. Anyone experiencing serious illness lives through the burden of an undignified experience; it is a consequence of our reasonable expectation...

Cancer’s Longterm Effects

I recently attended a reception in San Francisco for a cancer advocacy group and I was struck by a particular story one of the speakers told as part of the evening’s events. Generally, patient stories are an effective way to communicate both the heartwarming examples of our progress in cancer...

Ciitizen’s Biden Cancer Summit

This past March in Las Vegas, I slipped between thousands of business suits and briefcases, the swaying badges of the HIMSS conference draped around the many craning necks, and found my seat for the event’s first keynote speech: a presentation by Seema Verma, the Administrator for the Centers for Medicare...

The Value of Our Health Data

Immediately upon joining Ciitizen as director of marketing and communications, I had a lot of homework to do. I understood the mission: to help sick patients, particularly those battling cancer, obtain and share their health data. I understood the point: the advance of precision medicine and modern care is dependent...