Pending Federal Privacy Legislation: A Status Update

In our initial blog post of February 20th, “For Your Radar – Huge Implications for Healthcare in Pending Privacy Legislation,” we broadly discussed six key issues for healthcare stakeholders in the potential federal privacy and data protection legislation. We committed to future posts comparing and contrasting specific legislative proposals. What’s happened...

Imaging Included

Radiology BusinessAs Deven stated in the last post, the “designated record set”- the data that we, as patients, have a right to -is an often misunderstood aspect of our rights under HIPAA. As an example, many patients don’t realize they have a right to copies of all of their imaging-every...

Reluctance to Change

Lisa Taylor wrote this past Tuesday, when discussing the lack of compliance from various health records departments: “Change is hard, and the reluctance to change is real and daunting.” Ain’t that the truth, and don’t we all know it! I, for one, find it continually difficult to change my lifestyle,...

Your Health Data Rights

Before I came to work at Ciitizen, I was the Deputy Director for Health Information Privacy at the HHS Office for Civil Rights, which is the office that oversees the Health Insurance Portability and Accountability Act (HIPAA) privacy, security and breach notification regulations. When you’re a privacy nerd like me,...

The Value of Our Health Data

Immediately upon joining Ciitizen as director of marketing and communications, I had a lot of homework to do. I understood the mission: to help sick patients, particularly those battling cancer, obtain and share their health data. I understood the point: the advance of precision medicine and modern care is dependent...

My Sister Tania

In April of 2014, my kid sister Tania went to the hospital complaining of pain in her breast. Her record shows that she described symptoms typically considered red flags for a tumor. She felt a hard mass in her left breast weeks before making this appointment. She claims the coloration...