The Doctor Is In For #blackdatamatters

Yesterday, patient advocate and founder of TOUCH Ricki Fairley joined breast cancer surgeon Dr. Monique Gary to discuss the importance of clinical trials for black cancer patients on her show The Doctor Is In. She was joined by fellow breast cancer survivors Chawnte Randall, Sheila McGlown, and Sharon Rivera, all...

The Value of Health Data — Clinical Trials

The Value of Health Data — Clinical TrialsUdeMNouvelles — Université de MontréalLast year, when we first began helping cancer patients collect their medical records, I had a conversation with the wife of a cancer patient to gage her interest in having her husband’s cancer records.He was just getting ready to begin chemotherapy for liver cancer, and she...

Asking For A Friend

I often get asked whether a close friend or family member can ask for another individual’s medical records. The very sick often have little energy to devote to obtaining their records, a time and energy-consuming process, so friends and family members frequently act as caregivers, and they are eager to...

Overcoming the Obstacles

Sitting in the office of Dr. Alexander Swistel at the New York-Presbyterian/Weill Cornell Medical Center, an internationally-recognized breast surgeon who has pioneered many of the newest advances in breast cancer treatments, I watched my 70 year old mother being examined after her third breast cancer diagnosis in 20 years. She...

Dinosaur Technology

Stacey Tinianov, one of the most passionate advocates for cancer awareness I’ve ever met, wrote this week: “It is NOT hyperbole to say health data portability will save lives.” I think the inverse is also true. It is NOT hyperbole to say that a lack of health data portability will continue...