From the very beginning.
Ciitizen is a platform that helps you collect, summarize, and share your medical records digitally. It can be used to get a second opinion, coordinate with caregivers, or donate to research.
Starting with cancer, we are giving patients better control of their health outcomes.
We are here for you. Ciitizen was founded by Anil Sethi in honor of his sister Tania, who died of metastatic breast cancer in 2017. Tania received care across 17 institutions and saw 23 oncologists, and while she was able to get some of the best care, her caretakers were always acting on limited information because her health history was fragmented – and she didn’t have control over it.
So Ciitizen was founded to change that reality for all of us.
If you choose to join, Ciitizen will gather health data from the health care providers that you indicate and they will organize that data in a way that you can easily share with other doctors, clinical trial coordinators or even donate to research.
In addition, when you sign up and request your records through the platform, Ciitizen will donate $10 to one of the advocacy organizations below as part of their Give Back Program. (Terms and Conditions)
Diagnosed with breast cancer, May 16, 2016
Diagnosed with ovarian cancer, September 2, 2016
Metastatic breast cancer since March 2014
Michael is a Bronx native and an early stage male breast cancer thriver. He is a lead advocate for the Male Breast Cancer Coalition and has been instrumental in patient, research and policy advocacy since his diagnosis in 2010.
Kelly is a mother, wife, daughter and physician diagnosed with early stage breast cancer in 2008. She has been an active patient, policy and research advocate living with metastatic breast cancer since 2013.
Featured Ciitizen Health Data Rights Ambassadors
Susan is a two-time cancer warrior, diagnosed over 35 years ago with Hodgkin's Lymphoma and diagnosed in 2017 with breast cancer. She is an active advocate for research into late and long term effects of treatment.
Marianne is the founder of a 500+ person online support community. While she was diagnosed with early stage breast cancer in 2016, she is a staunch supporter of the metastatic community via her support for Metavivor.
Become an Ambassador for Ciitizen
Your voice is important in the effort to help educate individuals about the value of health data and their individual health data rights. If you believe individuals with a diagnosis or history of cancer should have control over their own health data to use for their care coordination, accessing second opinions or sharing with research, we would love to talk to you.
Please contact email@example.com to learn more.
With each user that requests their health records, Susan will work with Ciitizen to donate to one of the following organizations:
How does it work?
Create your account
Click the blue “Sign Up” button above, then enter your email, name, and password
Request your Health Records
Search from a list of places you have received care
Add a picture of your photo ID
We get your records for you
Over the next 2-4 weeks, we will get your health records and add them to your Ciitizen account
Frequently Asked Questions
Q: Who is eligible for the beta?
A: Currently we are focused on cancer specifically. Over time we will add additional diseases before eventually scaling to improve healthcare for every person worldwide.
Q: Why is it so important to have your health information?
A: Around the world, a mountain of valuable health information needed to treat patients and accelerate research is trapped in silos because our medical institutions have no incentive to share it. Currently, there are misaligned incentives driving institutional stakeholders to hoard patient data for “competitive advantage,” falsely citing HIPAA and other regulatory requirements as justification for their roadblocks. Ciitizen aims to change that.
Patients have the right under HIPAA to copies of all of their health data and they can share it with whomever they choose, whenever they want. In the hands of those who need it most, personal health information will not only improve care coordination but also has the potential to lead researchers to groundbreaking treatments.
Q: Why was Ciitizen formed?
A: Ciitizen was founded by Anil Sethi in honor of his sister Tania, who was killed by metastatic breast cancer in 2017. Our mission is to provide patients with control of their comprehensive health information (including clinical, genomic, and imaging data) and give them the choice of sharing it with whomever they choose.
Q: I created an account already, but where do I log in?
A: Click “Log In” on the ciitizen.com website and log in with your username and password, or go to app.ciitizen.com and log in directly.
Q: What type of technology do I need to use Ciitizen?
A: All you need is a computer, an Internet connection, and an Internet browser such as Firefox, Google Chrome, or Safari.
Q: What do you do with my health data?
A: Your health data belongs to you. We do not share it with any third parties without your explicit consent. We use your data internally to create your account and to improve our product for your best use. We will always ensure nobody has or gets access to your data without your explicit consent.
Q: Is it safe to keep my information on your platform?
A: Ciitizen uses HIPAA compliant Amazon Web Services (AWS) to maintain your data. AWS is an encrypted platform in widespread use by companies worldwide, and their product reputation depends on keeping data secure. Additionally, we have stringent policies for staff regarding access to data aimed at ensuring your data is protected at all times.
Q: How much does it cost to join Ciitizen?
A: Ciitizen currently does not charge users for use of the platform.
Q: How do you make money?
A: Your data is valuable – and we let you control what happens to it. When there are opportunities for you to monetize your data, Ciitizen will take a transaction fee.