Ciitizen is conducting a next generation, digital Natural History Study to learn more about Rett syndrome and to accelerate the drug development efforts

This study is only open to US residents with a diagnosis of Rett Syndrome and a confirmed alteration in MECP2.

Ciitizen is excited to launch a next generation, digital Natural History Study to learn more about Rett syndrome and support drug development efforts.

This study is only open to US residents with a diagnosis of Rett Syndrome

Why is this digital natural history study important?

Natural History Studies and real world evidence are critical to the drug development process. Ciitizen has developed a new method to make this process easier. A next generation, digital Natural History Study for Rett Syndrome is expected to facilitate:

  • Informing clinical researchers how a disease changes over time
  • Enabling better endpoint selection to use in clinical trials
  • Reducing the time it takes to study new medicines in clinical trials
  • Speeding up the time to get therapeutics to patients
  • The use of data as a placebo (instead of actual patients) in a clinical trial

What are the benefits?

In addition to adding your anonymous information to important research, Ciitizen will also assemble all of the medical records we request on your behalf into one digital file for your personal use.

  • You can have a big impact on research with minimum effort
  • You can access your loved one’s medical records in one place
  • You can easily share the medical records
  • You gain more control and understanding of your loved one’s healthcare
  • No fee to access your records
  • Hospitals only keep your records for 10 years

How it works

You can contact Ciitizen anytime in this process to get the assistance you need.

  • Reach live phone support (855)-244-8493
    M-F from 9am - 6pm ET
  • Live chat by clicking the blue chat icon in the lower right corner of this website
  • Click here to schedule a one-on-one appointment with a member of Ciitizen’s Patient Support team at a convenient time for you

Frequently Asked Questions

Have questions regarding our recent announcement with Invitae? Visit our announcement page here.

Q: Who is eligible for the Ciitizen service?

A: Currently Ciitizen is open to individuals with a diagnosis or history of breast cancer, leukemia, cholangiocarcinoma, head and neck cancers, neurological disorders such as SCN2A, FoxG1, Rett and several other rare diagnoses. The platform will be offered more broadly in the future as Ciitizen develops support for additional therapeutic areas.

Q: Why is it so important to have your health information?

A: When you have access to your health information, you have the power to seek additional treatment options, to find potential clinical trials, and to share your information for research. When it resides only with your medical providers, you are dependent on them to keep it (and most providers do not keep records for more than 10 years); you’re also dependent on them to send it where you need it to go. By law health care providers are required to give you copies of your health records – but they are not required to do this immediately (they can take up to 30 days or more in some cases), and they can charge you a reasonable fee to do so. Having your health information helps you be more informed and more prepared, and allows you to participate in research to help others.

Q: Why was Ciitizen formed?

A: Ciitizen was founded by Anil Sethi in honor of his sister Tania, who was killed by metastatic breast cancer in 2017. Tania saw 17 oncologists, and went to 23 institutions during the course of her treatment, and while she was able to get some of the best care, her caretakers were always acting on limited information because her health history was so fragmented – and she didn’t have control over it. Our mission is to help patients explore all of their options by providing them with control of their comprehensive health information (including clinical, genomic, and imaging records) and the choice to share it with whomever they choose.

Q: I created an account already, but where do I log in?

A: Click “Log In” on the website and log in with your username and password, or go to and log in directly.

Q: Can I bring health records that are already in my possession onto the Ciitizen platform?

A: Yes, you have the option to upload health records that you have in your possession already.  To upload your records after you have created your profile choose “get records” and then choose “have records to upload click here.”

Q: What type of technology do I need to use Ciitizen?

A: All you need is an internet connection and an internet browser such as Firefox, Google Chrome, or Safari. You can then access your Ciitizen account using a desktop computer, a laptop, a tablet, or a phone. 

Q: What type of identification documents do I need to sign up for Ciitizen?

A:  When you sign up you will need a copy of your driver’s license (or official government-issued photo id), which is required to obtain records on your behalf from the providers you identify. 

Q. What type of identification documents do I need if I am signing up my child for Ciitizen?

You have the right under the Health Insurance Portability and Accountability Act (HIPAA) to get copies of your child’s records, but you will need to submit a copy of your child’s birth certificate, and a copy of your driver’s license, in order for us to show your child’s medical providers that we are seeking these records on your behalf as a parent of your child. If you are the child’s guardian, you will need to submit proof of guardianship.

Q. What type of identification documents do I need if I am signing up for Ciitizen on behalf of another adult?

You have the right under HIPAA to get copies of another person’s medical records if you are the “personal representative” of that individual.  In the case of a living adult, a personal representative is someone who has the legal authority to make medical decisions for that adult (for example, a health care proxy or power of attorney). You will need to submit a copy of the paperwork that shows you have this authority.  In the case of an adult who is deceased, you can obtain these records if you have been named in the patient’s will as the executor of the estate, or a court has appointed you the administrator of the estate – or some states will allow you to obtain records if you are a surviving spouse or other next of kin.  Our onboarding process (or customer service) will direct you to the types of documents you might need to upload in this situation.  

Q: How do I reset my password?

A: If you ever need to reset your password, simply click “Forgot Password?” on the login page located at and we will email you a link to reset your password; for security reasons, this link expires in 24 hours. If you have trouble resetting your password or do not receive a link, you can also reach out to

Q: How do you get my health records?

A: The simplest way to receive your complete health records is to request that Ciitizen collect health records on your behalf directly from the healthcare providers you designate. Once your records are released by the provider, they are uploaded to your Ciitizen account. Subject to our policies and terms of use, only you have access to these records and no third parties have access to this information unless you consent to share it with them. Alternatively, you can upload your records into your account directly.

Q: What do you do with my health records?

A: Ciitizen is the technology service that allows you to request access to copies of your historical health information and records through the “right of access” granted under the Health Insurance Portability and Accountability Act (also known as “HIPAA”), as well as through online portal accounts made available to you by some health care providers or health plans. Ciitizen aggregates and standardizes your Health Records, transforms them into digital data, and analyzes the information to offer you opportunities to share your information (for example, with caregivers, with your medical professionals, to find treatment, or to power research).

Q: Who can see my information – who has access?

A: The people who have access to your information are those that you share with specifically through your Ciitizen profile. In addition, select individuals who work for Ciitizen will have access to your health information on an as needed basis and only for purposes of maintaining your account, for improving our services, and for determining which opportunities may be of interest to you. We will not commercialize or share your information with any third parties without your explicit consent. Only those individuals working for Ciitizen who have a need to access your information will be granted permission to do so.

Q: How do I share my health information?

A: You share your health information by granting someone access to your Ciitizen profile through the “Care Team” or “Share” features. You can grant access to anyone you choose simply by providing an email address for the person with whom you want to share your information. You can designate how long that person should have access to your account and you may revoke access at any time. Ciitizen will also notify you of opportunities for you to share your health information – and you can decide, either in advance or at the time you receive notice of each opportunity, whether or not you want to share your information.

Q: Is it safe to keep my information on your platform?

A: Ciitizen uses HIPAA-compliant cloud services to maintain your information. Additionally, we encrypt information locally and have stringent policies for staff regarding access to information aimed at ensuring your information is protected at all times. We train staff and contractors regularly on our company security policies and requirements. Although we take standard industry precautions to prevent breaches – we are also prepared if they happen. We are required by federal and state law to notify you (and in some cases, regulatory authorities) promptly if there has been a breach of your health information, and we act promptly to investigate breaches to determine the cause and do our best to ensure to mitigate and resolve. Subject to relevant laws and regulations, we never share your information with any third parties or access it for any other commercial purpose without your explicit consent.

Q: What happens to my information if Ciitizen is sold or ceases to exist?

A: You own the access to your information, so even if Ciitizen is sold, you maintain your right to close your Ciitizen account at any time (and you can either request that the information in your profile be securely destroyed, or you may download the data for your own use). Where possible, we will inform you in advance of a transfer of ownership so you can decide whether to continue your account with a new owner. Similarly, if Ciitizen ceases to exist, except where barred by law we will provide you with advance notice and allow you to delete or transfer your account.

We also are committed to returning to Ciitizen users a portion of value gained from sharing their information with researchers, to the extent permitted by law (for example, in the form of direct payment, services, discounts, donations, or other value).

Most importantly – it will always be your choice of whether or not to share your health data with anyone. You can always change your mind and choose not to share with researchers if that is your preference. Your profile is yours to use even if you decide not to share it with anyone else.

Q: What is a Ciitizen Research Summary?

A: Ciitizen uses our patent pending machine learning (ML) engine to take the thousands of pages of documents found in a patient’s history and summarizes the most important elements in a patient’s disease. The elements in this summary are then matched with clinical terminology codes so that researchers can immediately make use of this information, such as in clinical trials or observational studies.

Q: Who will my information be shared with if I decide to share my records for research? Who are your partners?

A: Ciitizen works with partners that have a vision aligned to advance research for cancer and rare disease. These partners include physicians, academic institutions, drug companies and independent research organizations that support them. We will never disclose your information for insurance, advertising, or to 3rd parties not related to research without your express consent.

Q: Why should I share my records for research? Will my information be identifiable?

A: By agreeing to share your health information for research, you can help drug companies and research physicians to better understand the experience of patients like you, which can help lead to new treatments in the future. If you agree to your information being shared for observational research, we will share a summary of your profile with our research partners, for research purposes only. The information about you that we share with researchers will not contain information like your name, date of birth, phone number, address or other information that can be easily used to identify you. In addition, we will contractually prohibit vetted partners from attempting to re-identify the information.

Q: What does it mean that Ciitizen shares value with patients when their information is used in research?

A: Should a patient’s information be included in a study, Ciitizen is committed to returning a portion of the value gained from this study with users to the extent permitted by law (for example, in the form of direct payment, services, discounts, donations, or other value) or to donate this value to an advocacy or research non-profit as directed by the patient.

Q: What is the record access process?

A: You have the right under federal law (HIPAA) to get copies of all of your health records. Ciitizen helps you leverage this right by submitting your health records requests to your health care providers – and by educating providers about HIPAA compliance if necessary to help get these requests fulfilled.

Q: How quickly will I get my records?

A: HIPAA requires that providers send records to patients within 30 days of receiving the request except in a few select cases. Individual cases will vary on how quickly records will arrive. After a request is made, we follow-up and urge providers to get them to us as soon as possible. In rare cases, providers won’t send records in a timely fashion. After 45 days and multiple follow-up communications we will stop trying to collect these records and share next steps on how you can approach getting these records into your profile.

Q: How far back can you get my health records?

A: Ciitizen will ask for records going back to the date of your disease diagnosis. Health care providers do not have to keep your records indefinitely – and how long they are required to keep them varies by state law. In general, we have found it difficult to get records that are older than 10 years and, in some cases, providers may destroy them earlier than that.

Q: Why do I need to provide my signature?

A: The HIPAA right to copies of your records is YOUR right – so requests for your records need to come from you. We place your signature on a form letter we send to request your records. We only use your signature to sign records request letters, and these letters are ONLY sent to your medical providers.

Q: Why do I need to provide a clear (not blurry) copy of my photo ID?

A: Your medical requests are submitted to your medical providers by fax or by email – so the provider needs some way to prove identity, and that you authorized the request letters to be sent. A clear copy of your photo ID is a way to remotely show that you are making the request.

Q: Why does my signature and my signature on my ID need to match?

A: Your medical provider needs some assurance that it is you who authorized the request for records. They will look for a decent match between your signature and the signature on the ID in order to prove identity and make sure that the request for records is coming from you.

Q: My provider has contacted me directly about my request – what should I do?

A: Many providers, as a matter of company policy, will contact a patient about a records request just to confirm that the patient submitted the request. If your provider contacts you to confirm that you want your records to be sent to Ciitizen, you should confirm that you want your records sent to Ciitizen, unless you have changed your mind. (After all, it is YOUR right to your records that Ciitizen is helping you to exercise—so it is not surprising that providers may want to make sure that you authorized the records request.) However, if the provider calls and wants to send your records directly to you instead of Ciitizen – or if they call to tell you they won’t honor the request, or if they send you a bill for the records, or push back in any way – please contact us at so we can help successfully resolve this.

Q: Will my records be complete?

A: Your right under HIPAA is to ALL of your health records maintained by your healthcare provider, and the request to your provider states this clearly. We review your records when they come in to make sure they contain information that is customary for a patient with your health history – however, we cannot know for sure whether your provider has sent us all of the health record information that they have about you. Please check your records and let us know if you think something is missing.

Q: What if a provider is refusing to honor a records request or is charging too much for the records?

A: On occasions, providers refuse to comply with the HIPAA right of access by refusing to send records or by charging too high a fee. This could happen for a variety of reasons, but we are seeing higher compliance. For example, see Ciitizen’s Patient Record Scorecard. We escalate your requests to higher level officials at the provider in order to do all that we can to make sure your provider complies with HIPAA – but we don’t have the power to enforce the law against them. If we are unable to get one of your providers to comply with HIPAA after 45 days, we will cease following up on that record and let you know next steps on how you can pursue it with your provider directly. It’s possible in some cases that the records may need to be sent to you first – and then to us for population in your Ciitizen account; if that’s the case, we will provide you with assistance, including covering any costs involved in getting these records to you and then on to us. We can also advise you about how to file a complaint with federal regulators if you want to do that.

Q: I have received a bill from my provider for the records Ciitizen requested. What should I do next?

A: Ciitizen uses the HIPAA right for individuals to be able to get copies of their health information in order to populate your Ciitizen account. Because this is your right of access, and the requests are submitted on your behalf, occasionally a health care provider may send you a bill for your records. (HIPAA places limits on what fees can be charged to patients – and many providers give patients copies of their records for free; however, the law does permit a reasonable, cost-based fee to be charged.) Please promptly send the bill to so we can make sure it is compliant with HIPAA and then Ciitizen will pay the bill on your behalf. Your Ciitizen profile is free for your use, and Ciitizen pays any HIPAA-compliant fees related to the release of your records from a provider.

Q: Will the records sent to Ciitizen per my request include sensitive information?

A: Your HIPAA rights extend to all information in the health record except for notes from psychotherapy sessions that are kept separate from other health records (which is not all mental health information – just the notes of a psychotherapy provider during a psychotherapy session, frequently maintained separately from other health records). However, state laws often require additional consent before sensitive information like HIV test results, mental health or genetic information can be released, even to the patient. As a result, when you put in your health records requests as part of onboarding to Ciitizen, you will need to specify whether you are comfortable with having this sensitive information shared with Ciitizen. Once this information is in your profile, you have the right to decide whether or not to share any of your health record information with any third parties. If you have any questions, please reach out to

Q: I want to make sure the information in my Ciitizen profile is current – do I have to submit a new request every time I go back to my medical provider?

A: To check the status of a pending records request or request an update to your existing records, sign in to your Ciitizen profile, select the provider you would like to view to see the status, and then, if you’ve been to that provider recently, you can choose “Yes, update my records” to request a records update.

Q: I signed up on the website, where’s my invite?

A: We are inviting beta users off of our waitlist in waves to ensure we can provide the best support to our users, so there may be a delay. We greatly appreciate your patience. If you have any questions, feel free to reach out to

Q: How much does it cost to join Ciitizen?

A: Ciitizen does not charge users and the service is free for all patients.

Q: What is your business model – how do you make money?

A: Ciitizen is free to patients.  If you choose to consent to share your records for research, Ciitizen uses our patent-pending machine learning (ML) engine to translate the thousands of pages of your health records and creates a research-ready summary of your information. We call this the Ciitizen Research Summary. When you consent to allow researchers to access your summary, Ciitizen will receive a fee from that research organization. The Ciitizen Research Summary creates efficiency for researchers, reducing their cost and labor to make patient information research-ready. Ciitizen will only ever grant researchers access to summaries of Ciitizen users who have consented to share their information.

Online Terms of Service

Last updated: May 15, 2019

Summary: Welcome to the Terms of Service for Ciitizen. This document provides the legal terms of service for use of our website, as well as any of the Services that we offer. Please read the Terms carefully, as they include an agreement to waive the right to bring class action suits against us and to handle any claims you might have against us via arbitration. Please also review our Privacy Policy at

Ciitizen Corporation, a Delaware corporation (“Ciitizen,” “we,” “us,” “our”) provides its Services (defined below) to you through its website located at (the “Site”) and other related content, applications, services, tools and features (collectively, the “Service(s)”), subject to the following terms and conditions (as amended from time to time, the “Terms”). By using or accessing the Services, you are agreeing to these Terms. For purposes of these Terms, “you” and “your” means you as the user of the Services. If you use the Services on behalf of a company or other entity then “you” includes you and that entity, and you represent and warrant that (a) you are an authorized representative of the entity with the authority to bind the entity to these Terms, and (b) you agree to these Terms on the entity’s behalf.

We may modify these Terms from time to time. If we do this, we will update the “Last Updated” date at the top of these Terms. If we make changes that are material, we may also attempt to notify you, such as by e-mail notification and/or by placing a prominent notice on the first page of the Ciitizen website. However, it is your sole responsibility to review the Terms from time to time to view any such changes. The updated Terms will be effective as of the time of posting, or such later date as may be specified in the updated Terms. Your continued access to or use of the Services after the modifications have become effective will be deemed your acceptance of the modified Terms.


In addition, when using certain services, you will be subject to any additional terms applicable to such services that may be posted on such Service from time to time. All such terms are hereby incorporated by reference into these Terms.

Table of Contents

  1. 1. Access and Use of the Service
  2. 2. Conditions of Use
  3. 3. Intellectual Property Rights
  4. 4. Copyright
  5. 5. Third Party Services and Materials
  6. 6. Disclaimer of Warranties
  7. 7. Limitations of Liability
  8. 8. Indemnity and Release
  9. 9. Dispute Resolution by Binding Arbitration
  10. 10. Termination
  11. 11. User Disputes
  12. 12. General
  13. 13. Your Privacy
  14. 14. California Residents
  15. 15. Contact Us

1. Access and Use of the Service

Summary: Ciitizen provides a platform for (1) enabling users to collect their health information through the HIPAA right of access, (2) using and sharing Health Information (defined below), and (3) authorizing Ciitizen to collect Health Information on a user’s behalf. Users should understand that the Ciitizen platform and any Services do not constitute medical advice, and Ciitizen did not generate such Health Information, and is not responsible for the Health Information’s completeness or accuracy; Ciitizen is also not responsible for verifying any Health Information that the user provides. You are required to register to use our Services and you are responsible for protecting your user credentials. Ciitizen also may modify or discontinue the Services or any particular feature; we agree to notify you by e-mail prior to termination of any inactive accounts.

Services Description.The Service is a web-based platform that (i) allows users to request access to their historical health information and records (“Health Information”) through the “right of access” granted under the Health Insurance Portability and Accountability Act (“HIPAA”), as well as through online portal accounts made available to you by some health care providers or health plans, (ii) aggregates and standardizes (to the extent possible) such Health Information, (iii) allows users to use and disclose such aggregated, standardized Health Information with third parties, including caregivers and medical professionals through their health profile, and (iv) allow users to post content and interact with other users.

User Consent.As part of the Service, you may choose to have Ciitizen collect Health Information on your behalf maintained by (1) health care providers or health plans with whom you have, or previously had, a patient or subscriber relationship, or (2) from third-party sites. You may (1) link directly to online portals and/or (2) fill out and sign HIPAA requests for access forms (“HIPAA Access Forms”) and request Ciitizen to send those forms to designated health care providers and health plans, in each instance to enable Ciitizen to obtain your Health Information and upload it into your account.

By taking advantage of either or both routes for obtaining your Health Information, you acknowledge that you are asking Ciitizen to obtain your Health Information on your behalf. You further acknowledge that when you request authorization for Ciitizen to access an online portal provided by your health care provider or your health plan, you will be directly connected to an online website for the health care provider or health plan you have designated, and Ciitizen will submit information (including user names and passwords) that you provide in order to log into that portal and obtain your Health Information to upload to your Ciitizen account. By accessing an online portal or completing a HIPAA Access Form in order to enable Ciitizen to obtain your Health Information, you authorize and permit Ciitizen to use and store information provided by you (for example, information on the HIPAA Access Form, user names and passwords) and any Health Information collected from third parties in order to provide the Services, including processing and using such Health Information for product development, improvement, demo and training, and aggregated and anonymized searching capabilities. You represent and warrant that you own all right, title and interest in and to the Health Information collected from third parties and any data you provide to us (including any and all intellectual property rights therein), subject to Ciitizen’s right to Work Product (as defined below) as set forth below.

You acknowledge there may be delays in record request processing from your health providers and health plans. Despite our reasonable efforts, Ciitizen also may not be able to obtain some or all of your Health Information and we do not guarantee or assume any responsibility or liability for the completeness, timeliness, accuracy, deletion or non-delivery of any Health Information. Ciitizen is also not responsible for the way in which data is displayed on the Site or through the Service, as this may be impacted by the nature and form of the Health Information that Ciitizen receives from you or on your behalf.

You may add self-entered historical health information to your health profile, and you may edit and remove any such contribution made by you from your health profile. Health Information that comes from records of health care providers or health plans accessed through your HIPAA “right of access” will be “read only” and cannot be altered, although you will have a choice of whether or not to share such Health Information with others. If you believe any Health Information coming from the records of your health care providers or health plans is inaccurate, it is your responsibility to address this issue with the relevant health care provider(s) or health plan(s).

Service Disclaimer. THE SERVICES, INCLUDING ALL OF THE MATERIAL AND INFORMATION MADE AVAILABLE THROUGH THE SERVICES, ARE FOR INFORMATIONAL PURPOSES ONLY AND DO NOT CONSTITUTE PROFESSIONAL MEDICAL ADVICE OR TREATMENT. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health. The Services are not a substitute for professional medical advice; never disregard professional medical advice or delay in seeking it because of something made available through the Services. If you think you may have a medical emergency, call your doctor or 911 immediately. Ciitizen does not recommend or endorse any specific tests, physicians, products, procedures, opinions, or other information that may be mentioned on the Services.

Ciitizen has no control over the completeness, validity, consistency or accuracy of any content provided (or lack of such) by you or others (such as hospitals, other health care providers, or health plans). You rely on any information provided by Ciitizen, or third parties providing services on behalf of Ciitizen to provide the Services, or other members solely at your own risk.

Your Registration Obligations. You must reside in the United States or any of its territories to use our Services. Minors under the age of majority in their jurisdiction are only permitted to use our Services if the minor’s parent or guardian accepts these Terms on the minor’s behalf prior to use of the Services. By using the Services, you represent and warrant that you meet all of these requirements.

You will be required to register with Ciitizen in order to access and use certain features of the Service. If you choose to register for the Service, you agree to provide and maintain true, accurate, current and complete information for your account. Our Privacy Policy describes how we handle the registration data and certain other information you provide to us when you use our Services. If you are under 18 years of age, you are not authorized to use the Service, with or without registering, unless your parent or guardian has provided their express prior consent. If you are under the 13 years of age, you may not use the Service, other than by having your parent or guardian register and use the Service on your behalf.

Member Account, Password and Security. You are solely responsible for maintaining the confidentiality and security of your Ciitizen username, password and other account information, and are fully responsible for any and all activities that occur under your account. You can access, edit and update your account via the You agree to (a) immediately notify Ciitizen at of any unauthorized use of your password or account or any other breach of security including unauthorized disclosure of your username and/or password, and (b) ensure that you log out of your account at the end of each session when accessing the Service. Ciitizen is not liable for any acts or omissions by you in connection with your account. We are not liable for any loss or damage arising from your failure to comply with this Section.

Modifications to Service. Ciitizen reserves the right to modify or discontinue, temporarily or permanently, the Service (or any part thereof) with or without notice. You agree that Ciitizen will not be liable to you or to any third party for any modification, suspension, or discontinuance of the Service; provided that if we discontinue the Service, we will use our best efforts to permit you to export any health information maintained by us for a period of thirty (30) days from when the Service is discontinued.

General Practices Regarding Use and Storage.You acknowledge that Ciitizen may establish general practices and limits concerning use of the Service, including without limitation the maximum period of time that Health Information, data or other Content will be retained by the Service and the maximum storage space that will be allotted on Ciitizen’s servers on your behalf. You acknowledge that Ciitizen reserves the right, in our sole discretion, to terminate accounts that are inactive for an extended period of time; provided that Ciitizen has provided you with at least fifteen (15) days’ prior notice to the e-mail associated with your account.

2. Conditions of Use

Summary: Currently, we provide the Services free of charge to the user. You are solely responsible for any content you create via the Services. Certain types of user-created content and conduct (as set forth below) are strictly prohibited. Ciitizen can take appropriate action – including legal action – where you are in violation of these Terms. You acknowledge and agree that the Services are for your personal use only.

User Conduct.You are solely responsible for all code, video, images, information, data, text, software, music, sound, photographs, graphics, messages or other materials (“Content”) that you upload, post, publish or display (hereinafter, “Upload”) or email or otherwise use via the Service. The following are examples of illegal or prohibited Content and/or use. Ciitizen reserves the right to investigate and take appropriate legal action against anyone who, in our sole discretion, violates these Terms, including without limitation, removing the offending Content from the Service, suspending or terminating the account of such violators and reporting you to the law enforcement authorities.

You agree to not use the Service to:

  • a) email or otherwise upload any Content that (i) infringes any intellectual property or other proprietary rights of any party; (ii) you do not have a right to upload under any law or under contractual or fiduciary relationships; (iii) contains software viruses or any other computer code, files or programs designed to interrupt, destroy or limit the functionality of any computer software or hardware or telecommunications equipment; (iv) poses or creates a privacy or security risk to any person; (v) constitutes unsolicited or unauthorized advertising, promotional materials, commercial activities and/or sales, “junk mail,” “spam,” “chain letters,” “pyramid schemes,” “contests,” “sweepstakes,” or any other form of solicitation; (vi) is unlawful, harmful, threatening, abusive, harassing, tortious, excessively violent, defamatory, vulgar, obscene, pornographic, libelous, invasive of another’s privacy, hateful racially, ethnically or otherwise objectionable; or (vii) in the sole judgment of Ciitizen, is objectionable or which restricts or inhibits any other person from using or enjoying the Service, or which may expose Ciitizen or its users to any harm or liability of any type;
  • b) interfere with or disrupt the Service or servers or networks connected to the Service, or disobey any requirements, procedures, policies or regulations of networks connected to the Service; or
  • c) violate any applicable local, state, national or international law, or any regulations having the force of law;
  • d) impersonate any person or entity, or falsely state or otherwise misrepresent your affiliation with a person or entity;
  • e) solicit personal information from anyone under the age of 18;
  • f) harvest or collect email addresses or other contact information of other users from the Service by electronic or other means for the purposes of sending unsolicited emails or other unsolicited communications;
  • g) advertise or offer to sell or buy any goods or services for any business purpose that is not specifically authorized by us;
  • h) further or promote any criminal activity or enterprise or provide instructional information about illegal activities; or
  • i) obtain or attempt to access or otherwise obtain any materials or information through any means not intentionally made available or provided for through the Service.

Fees.We currently provide the Service free of charge to our users. We reserve the right to charge a fee for certain portions of the Service in the future.

Special Notice for International Use; Export Controls. You agree that you will not export or re-export, directly or indirectly, the Services and/or other information or materials provided by Ciitizen hereunder, to any country for which the United States or any other relevant jurisdiction requires any export license or other governmental approval at the time of export without first obtaining such license or approval. In particular, but without limitation, the Services may not be exported or re-exported (a) into any U.S. embargoed countries or any country that has been designated by the U.S. Government as a “terrorist supporting” country, or (b) to anyone listed on any U.S. Government list of prohibited or restricted parties, including the U.S. Treasury Department’s list of Specially Designated Nationals or the U.S. Department of Commerce Denied Person’s List or Entity List. By using the Services, you represent and warrant that you are not located in any such country or on any such list. You are responsible for and hereby agree to comply at your sole expense with all applicable United States export laws and regulations.

No Commercial Use. The Service is for your personal use only. Unless otherwise expressly authorized herein or in the Service, you agree not to display, distribute, license, perform, publish, reproduce, duplicate, copy, create derivative works from, modify, sell, resell, exploit, transfer or upload for any commercial purposes, any portion of the Service, use of the Service, or access to the Service.

3. Intellectual Property Rights

User Content Transmitted Through the Service; Your Ownership of User Content and Your Health Information. With respect to the content or other materials you upload through the Service or share with other users or recipients (collectively, “User Content”), by posting or submitting your User Content through the Services, you represent and warrant that you have, or have obtained, all rights, licenses, consents, permissions, power and/or authority necessary to grant the rights granted herein for your User Content. You agree that your User Content will not contain material subject to copyright or other proprietary rights, unless you have the necessary permission or are otherwise legally entitled to post the material and to grant us the license described above. As between you and us, you and/or your licensors own all right, title and interest in and to the User Content and your Health Information. As a condition of your use of the Services, you grant us a nonexclusive, perpetual, irrevocable, royalty-free, worldwide, transferable, sublicenseable license to access, use, host, cache, store, reproduce, transmit, display, publish, distribute, modify and adapt and create derivative works (either alone or as part of a collective work) from your User Content and Health Information.

You acknowledge and agree that Ciitizen may preserve your User Content and Health Information and may also disclose your User Content and Health Information if required to do so by law or if we, in our sole discretion, hold the good faith belief that such preservation or disclosure is reasonably necessary to: (a) comply with legal process, applicable laws or government requests; (b) enforce these Terms; (c) respond to claims that any such User Content or Health Information violates the rights of third parties; or (d) protect the rights, property, or personal safety of Ciitizen, its users and the public. You understand that the technical processing and transmission of the Service, including your User Content and Health Information, may involve (a) transmissions over various networks; and (b) changes to conform and adapt to technical requirements of connecting networks or devices.

Services, Software and Trademarks. You acknowledge and agree that the Services and their content (other than the Health Information and User Content you submit or that we collect on your behalf), including their “look and feel” (e.g., text, graphics, images, logos), proprietary content, information and other materials, are protected under copyright, trademark and other intellectual property laws (collectively, other than your Health Information and User Content, the “Service Content”). You agree that Ciitizen and/or its licensors own all right, title and interest in and to the Service Content and the Services (including any and all intellectual property rights therein). You agree not to take any action(s) inconsistent with such ownership interests. We and our licensors reserve all rights in connection with the Services and the Service Content, including, without limitation, the exclusive right to create derivative works.

Except as expressly authorized by Ciitizen, you agree not to modify, copy, frame, scrape, rent, lease, loan, sell, distribute or create derivative works based on the Service or the Service Content, in whole or in part, except that the foregoing does not apply to your own User Content that you legally upload to the Service. In connection with your use of the Service you will not engage in or use any data mining, robots, scraping or similar data gathering or extraction methods. If you are blocked by Ciitizen from accessing the Service (including by blocking your IP address), you agree not to implement any measures to circumvent such blocking (e.g., by masking your IP address or using a proxy IP address). Any use of the Service or the Service Content other than as specifically authorized herein is strictly prohibited. The technology and software underlying the Service or distributed in connection therewith are the property of Ciitizen, our affiliates and our partners (the “Software”). You agree not to copy, modify, create a derivative work of, reverse engineer, reverse assemble or otherwise attempt to discover any source code, sell, assign, sublicense, or otherwise transfer any right in the Software. Any rights not expressly granted herein are reserved by Ciitizen.

The Ciitizen name and logos and all related names, logos, product and service names, designs and slogans are trademarks and service marks of Ciitizen or its affiliates or licensors (collectively the “Ciitizen Trademarks”). Other names, logos, product and service names, designs and slogans that appear on the Services are the property of their respective owners, who may or may not be affiliated with, connected to, or sponsored by us. Nothing in these Terms or the Service should be construed as granting, by implication, estoppel, or otherwise, any license or right to use any of the Ciitizen Trademarks without our prior written permission in each instance. All goodwill generated from the use of Ciitizen Trademarks will inure to our exclusive benefit.

Ciitizen Work Product. As a part of the Services, we may produce certain reports, summaries, graphs, or other analysis using your Health Information and/or any data you provide to us, or otherwise process said Health Information and data in any way (“Work Product”) and provide you with access to such Work Product. You acknowledge and expressly agree that any Work Product (not including the Health Information and User Content that you have provided) becomes the sole and exclusive property of Ciitizen and Ciitizen may use and disclose Work Product in any manner and for any purpose whatsoever, so long as no part of your Health Information and User Content is released externally without your explicit, revocable consent (unless legally required), without further notice or compensation to you and without retention by you of any proprietary or other right or claim in accordance with applicable laws. You hereby assign to Ciitizen any and all right, title and interest (including, but not limited to, any patent, copyright, trade secret, trademark, show-how, know-how, and any and all other intellectual property right) that you may have in and to any and all Work Product, and waive any moral rights you might have.

License Grant. Subject to your compliance with these Terms, Ciitizen hereby grants to you, a personal, worldwide, royalty-free, non-assignable, non-sublicensable, non-transferrable, and non-exclusive license to (a) use the software provided to you as part of the Services and (b) any Work Product for your personal health use only. The software license has the sole purpose of enabling you to use and enjoy the benefit of the Services as provided by us, in the manner permitted by these Terms and subject to the use restrictions described below. We and our licensors reserve all rights in connection with the Services and its content (other than your User Content), including, without limitation, any Work Product or the exclusive right to create derivative works.

Third Party Material. Under no circumstances will Ciitizen be liable in any way for any Content or materials of any third parties (including users), including, but not limited to, for any errors or omissions in any Content, or for any loss or damage of any kind incurred as a result of the use of any such Content. You acknowledge that Ciitizen does not pre-screen Content, but that Ciitizen and its designees will have the right (but not the obligation) in their sole discretion to refuse or remove any Content that is available via the Service. Without limiting the foregoing, Ciitizen and its designees will have the right to remove any content that violates these Terms or is deemed by Ciitizen, in its sole discretion, to be otherwise objectionable. You agree that you must evaluate, and bear all risks associated with, the use of any Content, including any reliance on the accuracy, completeness, or usefulness of such Content.

Feedback. We welcome feedback, comments and suggestions for improvements to the Services (“Feedback”). You acknowledge and expressly agree that any contribution of Feedback does not and will not give or grant you any right, title or interest in the Services or in any such Feedback. All Feedback provided by you to Ciitizen are non-confidential and becomes the sole and exclusive property of Ciitizen and Ciitizen may use and disclose Feedback in any manner and for any purpose whatsoever without further notice or compensation to you and without retention by you of any proprietary or other right or claim. You hereby assign to Ciitizen any and all right, title and interest (including, but not limited to, any patent, copyright, trade secret, trademark, show-how, know-how, moral rights and any and all other intellectual property right) that you may have in and to any and all Feedback.. Notwithstanding the foregoing, we will keep your identity and any PHI or sensitive information provided by you in connection with any Feedback strictly confidential.

4. Copyright

Summary: Ciitizen respects the rights of copyright owners and expects you to do the same. If you are a copyright owner, and you believe any content hosted by Ciitizen infringes your copyrights, you may submit a notification pursuant to the Digital Millennium Copyright Act by providing notice to our designated agent.

Copyright Complaints. Ciitizen respects the intellectual property of others, and we ask our users to do the same. If you believe that your work has been copied in a way that constitutes copyright infringement, or that your intellectual property rights have been otherwise violated, you should notify Ciitizen of your infringement claim in accordance with the procedure set forth below.

Ciitizen will process and investigate notices of alleged infringement and will take appropriate actions under the Digital Millennium Copyright Act (“DMCA”) and other applicable intellectual property laws with respect to any alleged or actual infringement. A notification of claimed copyright infringement should be emailed to line: “DMCA Takedown Request”). You may also contact us by mail or facsimile at:

Ciitizen Corporation 
3000 El Camino Real
3 Palo Alto Square, Suite 120
Palo Alto, California, 94306 

To be effective, the notification must be in writing and contain the following information:

  • an electronic or physical signature of the person authorized to act on behalf of the owner of the copyright or other intellectual property interest;
  • a description of the copyrighted work or other intellectual property that you claim has been infringed;
  • a description of where the material that you claim is infringing is located on the Service, with enough detail that we may find it on the Service;
  • your address, telephone number, and email address;
  • a statement by you that you have a good faith belief that the disputed use is not authorized by the copyright or intellectual property owner, its agent, or the law;
  • a statement by you, made under penalty of perjury, that the above information in your Notice is accurate and that you are the copyright or intellectual property owner or authorized to act on the copyright or intellectual property owner’s behalf.

Counter-Notice. If you believe that your User Content that was removed (or to which access was disabled) is not infringing, or that you have the authorization from the copyright owner, the copyright owner’s agent, or pursuant to the law, to upload and use the content in your User Content, you may send a written counter-notice containing the following information to Ciitizen:

  • your physical or electronic signature;
  • identification of the content that has been removed or to which access has been disabled and the location at which the content appeared before it was removed or disabled;
  • a statement that you have a good faith belief that the content was removed or disabled as a result of mistake or a misidentification of the content; and
  • your name, address, telephone number, and email address, a statement that you consent to the jurisdiction of the federal court located within Northern District of California and a statement that you will accept service of process from the person who provided notification of the alleged infringement.
  • If a counter-notice is received by Ciitizen, Ciitizen will send a copy of the counter-notice to the original complaining party informing that person that it may replace the removed content or cease disabling it in 10 business days. Unless the copyright owner files an action seeking a court order against the content provider, member or user, the removed content may be replaced, or access to it restored, in 10 to 14 business days or more after receipt of the counter-notice, at our sole discretion.

Repeat Infringer Policy. In accordance with the DMCA and other applicable law, Ciitizen has adopted a policy of terminating, in appropriate circumstances and at Ciitizen’s sole discretion, users who are deemed to be repeat infringers. Ciitizen may also at its sole discretion limit access to the Service and/or terminate the memberships of any users who infringe any intellectual property rights of others, whether or not there is any repeat infringement.]

5. Third Party Services and Materials

Summary: Ciitizen may from time to time include or link to services provided by third parties. We are not responsible for these materials or services. 

The Service may display, include or make available content, data, information, applications or materials from third parties (“Third Party Materials”) or provide links or other access to certain third party websites and resources. By using the Services, you acknowledge and agree that Ciitizen has no control over such third party websites and resources and that we are not responsible for examining or evaluating the content, accuracy, completeness, timeliness, validity, copyright compliance, legality, decency, quality or any other aspect of such Third Party Materials or websites. We do not warrant or endorse and do not assume and will not have any liability or responsibility to you or any other person for any Third Party Materials, websites, products, services or resources. You further acknowledge that Third Party Materials and links to other websites are provided solely as a convenience to you. Any dealings you have with third parties are between you and such third party, and you agree that Ciitizen is not liable for any loss or claim that you may have against any such third party.

6. Disclaimer of Warranties

Summary: Except as expressly stated, the Services provided by Ciitizen are “as is” and without warranties. 

Your access to and use of the Services are at your own risk. You understand and agree that the Services are provided to you on an “AS IS” and “AS AVAILABLE” basis. Without limiting the foregoing, to the maximum extent permitted under applicable law, Ciitizen, its parents, affiliates, related companies, officers, directors, employees, agents, representatives, partners and licensors (the “Ciitizen Entities”) DISCLAIM ALL WARRANTIES AND CONDITIONS, WHETHER EXPRESS OR IMPLIED, OF MERCHANTABILITY, FITNESS FOR A PARTICULAR PURPOSE OR NON-INFRINGEMENT. Without limiting any of the foregoing, the Ciitizen Entities make no warranty or representation and disclaim all responsibility and liability for: (a) the completeness, accuracy, availability, timeliness, security or reliability of the Services; (b) any harm to your computer system, loss of data, or other harm that results from your access to or use of the Services; (c) the operation or compatibility with any other application or any particular system or device; (d) whether the Services will meet your requirements or be available on an uninterrupted, secure or error-free basis; and (e) the deletion of, or the failure to store or transmit, your User Content and other communications maintained by the Services. No advice or information, whether oral or written, obtained from the Ciitizen Entities or through the Services, will create any warranty or representation not expressly made herein. 

Some jurisdictions do not allow the disclaimer or exclusion of certain warranties. Accordingly, some of the disclaimers set forth above may not apply to you or be enforceable with respect to you. If you are dissatisfied with any portion of the Service or with these Terms, your sole and exclusive remedy is to discontinue use of the Service 

If you are a user from New Jersey, the foregoing section titled “Disclaimer of Warranties” is intended to be only as broad as is permitted under the laws of the State of New Jersey. If any portion of this section is held to be invalid under the laws of the State of New Jersey, the invalidity of such portion shall not affect the validity of the remaining portions of the applicable section.

7. Limitations of Liability

Summary: Ciitizen is not be liable for certain types of damages resulting from certain types of claims as described herein. 


Some jurisdictions do not allow the limitation or exclusion of liability for incidental or consequential damages. Accordingly, some of the limitations set forth above may not apply to you or be enforceable with respect to you. If you are dissatisfied with any portion of the Service or with these Terms, your sole and exclusive remedy is to discontinue use of the Service. 

If you are a user from New Jersey, the foregoing section titled “Limitation of Liability” is intended to be only as broad as is permitted under the laws of the State of New Jersey. If any portion of this section is held to be invalid under the laws of the State of New Jersey, the invalidity of such portion shall not affect the validity of the remaining portions of the applicable section.

8. Indemnity

Summary: You agree to indemnify and hold Ciitizen and its affiliates, employees and agents harmless from any losses arising out of your use of the Service, or User Content or your violation of these Terms or violation of another’s rights. 

By entering into these Terms and using the Services, you agree to indemnify and hold Ciitizen and its affiliates and their officers, employees, directors and agents (collectively, “Indemnitees”) harmless from any and all losses, damages, liability and expenses (including reasonable attorneys’ fees), rights, claims, costs, actions of any kind and injury arising out of or in connection with: (a) your violation or breach of any term of these Terms or any applicable law or regulation; (b) your violation of any rights of any third party; (c) any unauthorized use of the Services; (d) your User Content, or (e) your negligence or willful misconduct.


Summary: You agree that all disputes with Ciitizen will be subject to binding arbitration on an individual basis to the extent permitted under applicable law.

a. Agreement to Arbitrate

This Dispute Resolution by Binding Arbitration section is referred to in this Terms of Service as the “Arbitration Agreement.” You agree that any and all disputes or claims that have arisen or may arise between you and Ciitizen, whether arising out of or relating to this Terms of Service (including any alleged breach thereof), the Services, any advertising, any aspect of the relationship or transactions between us, shall be resolved exclusively through final and binding arbitration, rather than a court, in accordance with the terms of this Arbitration Agreement, except that you may assert individual claims in small claims court, if your claims qualify. Further, this Arbitration Agreement does not preclude you from bringing issues to the attention of federal, state, or local agencies, and such agencies can, if the law allows, seek relief against us on your behalf. You agree that, by entering into this Terms of Service, you and Ciitizen are each waiving the right to a trial by jury or to participate in a class action. Your rights will be determined by a neutral arbitrator, not a judge or jury. The Federal Arbitration Act governs the interpretation and enforcement of this Arbitration Agreement.

b. Prohibition of Class and Representative Actions and Non-Individualized Relief


c. Pre-Arbitration Dispute Resolution

You agree that in the event of any dispute between you and the Ciitizen Entities, you will first contact Ciitizen and make a good faith sustained effort to resolve the dispute before resorting to more formal means of resolution, including without limitation, any court action. 

Ciitizen is always interested in resolving disputes amicably and efficiently, and most user concerns can be resolved quickly and to the user’s satisfaction by emailing support at If such efforts prove unsuccessful, a party who intends to seek arbitration must first send to the other, by certified mail, a written Notice of Dispute (“Notice”). The Notice to Ciitizen should be sent to Ciitizen Corporation, 3000 El Camino Real, 3 Palo Alto Square, Suite 120, Palo Alto, California, 94306 (“Notice Address”). The Notice must (i) describe the nature and basis of the claim or dispute and (ii) set forth the specific relief sought. If Ciitizen and you do not resolve the claim within sixty (60) calendar days after the Notice is received, you or Ciitizen may commence an arbitration proceeding. During the arbitration, the amount of any settlement offer made by Ciitizen or you shall not be disclosed to the arbitrator until after the arbitrator determines the amount, if any, to which you or Ciitizen is entitled.

d. Arbitration Procedures

After the informal dispute resolution process, any remaining dispute, controversy, or claim (collectively, “Claim”) relating in any way to your use of Ciitizen’s services and/or products, including the Services, will be resolved by arbitration. You and the Ciitizen agree that any Claim will be settled by final and binding arbitration, using the English language, administered by JAMS under its Comprehensive Arbitration Rules and Procedures (the “JAMS Rules”) then in effect (those rules are deemed to be incorporated by reference into this section, and as of the date of these Terms). Arbitration will be handled by a sole arbitrator in accordance with the JAMS Rules. Judgment on the arbitration award may be entered in any court that has jurisdiction. Any arbitration under the Terms will take place on an individual basis – class arbitrations and class actions are not permitted. You understand that by agreeing to the Terms, you and Ciitizen are each waiving the right to trial by jury or to participate in a class action or class arbitration. Notwithstanding the foregoing, you and Ciitizen will have the right to bring an action in a court of proper jurisdiction for injunctive or other equitable or conservatory relief, pending a final decision by the arbitrator. You may instead assert your claim in “small claims” court, but only if your claim qualifies, your claim remains in such court and your claim remains on an individual, non-representative and non-class basis. An arbitrator shall not be bound by rulings in prior arbitrations involving different users, but is bound by rulings in prior arbitrations involving the same user to the extent required by applicable law.

e. Costs of Arbitration

Payment for any and all reasonable JAMS filing, administrative and arbitrator fees will be in accordance with the JAMS Rules. If the value of your claim does not exceed $75,000, Ciitizen will pay for the reasonable filing, administrative and arbitrator fees associated with the arbitration, unless the arbitrator finds that either the substance of your claim or the relief sought was frivolous or brought for an improper purpose.

f. Confidentiality

All aspects of the arbitration proceeding, and any ruling, decision, or award by the arbitrator, will be strictly confidential for the benefit of all parties.

g. Severability

If a court or the arbitrator decides that any term or provision of this Arbitration Agreement (other than the subsection (b) titled “Prohibition of Class and Representative Actions and Non-Individualized Relief” above) is invalid or unenforceable, the parties agree to replace such term or provision with a term or provision that is valid and enforceable and that comes closest to expressing the intention of the invalid or unenforceable term or provision, and this Arbitration Agreement shall be enforceable as so modified. If a court or the arbitrator decides that any of the provisions of subsection (b) above titled “Prohibition of Class and Representative Actions and Non-Individualized Relief” are invalid or unenforceable, then the entirety of this Arbitration Agreement shall be null and void, unless such provisions are deemed to be invalid or unenforceable solely with respect to claims for public injunctive relief. The remainder of these Terms will continue to apply.

h. Opt-Out

You have the right to opt-out and not be bound by the arbitration provisions set forth in these Terms by sending written notice of your decision to opt-out to or to the U.S. mailing address listed at the bottom of this Agreement. The notice must be sent to Ciitizen within thirty (30) days of your registering to use the Services or agreeing to these Terms, otherwise you shall be bound to arbitrate disputes in accordance with these Terms. If you opt-out of these arbitration provisions, Ciitizen also will not be bound by them.

i. Future Changes to Arbitration Agreement

Notwithstanding any provision in these Terms to the contrary, Ciitizen agrees that if it makes any future change to this Arbitration Agreement (other than a change to the Notice Address) while you are a user of the Services, you may reject any such change by sending Ciitizen written notice within thirty (30) calendar days of the change to the Notice Address provided above. By rejecting any future change, you are agreeing that you will arbitrate any dispute between us in accordance with the language of this Arbitration Agreement as of the date you first accepted these Terms (or accepted any subsequent changes to these Terms).

10. Termination

Summary: Ciitizen may suspend or terminate any licenses granted by us and/or your account if you have violated these Terms (including violations of the law and fraudulent or abusive activity). 

If you breach any of the terms of these Terms, all licenses granted by Ciitizen will terminate automatically. Additionally, Ciitizen may suspend, disable, or delete your account and/or the Services (or any part of the foregoing) with or without notice, for any or no reason. If Ciitizen deletes your account for any suspected breach of these Terms by you, you are prohibited from re-registering for the Services under a different name. In the event of account deletion for any reason, Ciitizen may, but is not obligated to, delete any of your Content. Ciitizen shall not be responsible for the failure to delete or deletion of your Content. All sections which by their nature should survive the termination of these Terms shall continue in full force and effect subsequent to and notwithstanding any termination of this Agreement by Ciitizen or you. Termination will not limit any of Ciitizen’s other rights or remedies at law or in equity. Any suspected fraudulent, abusive or illegal activity that may be grounds for termination of your use of Service, may be referred to appropriate law enforcement authorities. You agree that any termination of your access to the Service under any provision of this Terms of Service may be effected without prior notice, and acknowledge and agree that Ciitizen may immediately deactivate or delete your account and all related information and files in your account and/or bar any further access to such files or the Service. Further, you agree that Ciitizen will not be liable to you or any third party for any termination of your access to the Service.

11. User Disputes

Summary: You agree that you are solely responsible for interactions with other Ciitizen users, and Ciitizen is not obligated to get involved in disputes between its users. 

You agree that you are solely responsible for your interactions with any other user in connection with the Service and Ciitizen will have no liability or responsibility with respect thereto. Ciitizen reserves the right, but has no obligation, to become involved in any way with disputes between you and any other user of the Service.