Blog

The Rare Disease Crusaders

My daughter was seven months old when she had her first seizure. It scared me to death, and her spells would continue for months until we discovered the reason: she suffers from a severe and rare neurodevelopmental disorder called FOXG1 syndrome.  It wasn’t until weeks after her diagnosis that I...

Patient Stories: Tallulah Anderson

Tallulah Anderson comes from a very large family; one that happens to be genetically predisposed to breast cancer. “I have seven brothers and three sisters,” she said during a recent conversation; “and both my mom and dad had breast cancer.”  Tallulah’s father and brother passed away from breast cancer, as...

Breastcancer.org Tackles Care in the COVID-19 Era

COVID-19 has forced human beings around the world to withdraw from the public undertakings of their everyday lives, prioritizing social distancing measures whenever possible. Unfortunately for cancer patients—who rely on treatments, surgeries, and face-to-face visits with their care teams—telemedicine and prescriptions-by-mail aren’t enough in the fight against their disease. With...

Patient Stories: Fred Neubauer

Fred Neubauer was literally sitting in the chemo chair when we spoke with him recently as part of our patient story blog series. “They haven’t started with the actual meds yet,” he said calmly; “They’re giving me fluids to keep me hydrated and some anti-nausea to start.”  Fred was diagnosed...

Cholangiocarcinoma Foundation’s 2020 Annual Conference

Announcing Ciitizen’s Participation in the Cholangiocarcinoma Foundation’s 2020 Annual Conference The Cholangiocarcinoma Foundation (CCF) is going virtual this year for its annual conference, spanning three days this week, from July 22nd through 24th. At Ciitizen, we’re looking forward to dialing into the conference’s exciting programming and will host a virtual...

The Doctor Is In For #blackdatamatters

Yesterday, patient advocate and founder of TOUCH Ricki Fairley joined breast cancer surgeon Dr. Monique Gary to discuss the importance of clinical trials for black cancer patients on her show The Doctor Is In. She was joined by fellow breast cancer survivors Chawnte Randall, Sheila McGlown, and Sharon Rivera, all...