Black breast cancer patients are 40% more likely to die than white breast cancer patients. Help us increase research efforts to make precision medicine a reality, while taking control of your own health & data.

The first step to join, is to get control over your medical data. Ciitizen makes it easy and secure. Enter your mobile number below to receive your unique access link:​

WHY MY #BLACKDATAMATTERS

RICKI FAIRLEY

Grandmother | Mother | Breastie | Thriver
CEO of Touch, The Black Breast Cancer Alliance

Read Ricki's story here

DR. JAMES LILLARD

Father | Scientist | Ally
Associate Dean for Research, Morehouse School of Medicine

Read James' story here

TERRI LYNN

Breast Cancer Patient | Advocate
Business Manager at Touch, The Black Breast Cancer Alliance

Read Terri’s story here

SHEILA MARIE MCGLOWN

25 Year Air Force Veteran, Mother, Wife, Friend, 10 Year MBC Survivor, Thriver, Daughter, Sister, Love GOD and Breast Cancer Advocate (Living Life on my Own Terms)

Read Sheila's story here

SHARON RIVERA

Bridging the Gap, between underserved cancer patients, doctors and researchers through knowledge, awareness and endowments.

Read Sharon’s story here

WHY PARTICIPATE IN #BLACKDATAMATTERS?

TALK IS CHEAP. ACTION ISN’T.

Starting with black breast cancer, the mission of Black Data Matters is to put patients in a position of power to directly change a research and medical system that often fails black patients. 

This initiative is led by Touch, The Black Breast Cancer Alliance, and Morehouse School of Medicine. Powered by Ciitizen.

We make it easy for you to be in control of your health data by collecting, digitizing and organizing your medical records through the Ciitizen platform. Because when we are empowered with our health data, we can drive change to eliminate breast cancer health inequities and increase research that can help our community, NOW.

No more excuses. It’s time to take action now.

We can do more. Together.

HOW TO JOIN THE
#BLACKDATAMATTERS INITIATIVE

1

Create your free Ciitizen profile and request your health data.

Ciitizen is a free tool available to you as a part of this initiative to easily and securely gain control of your medical data. Click the “Join Now” button and enter your mobile number. We’ll text you your unique access link. All you need is a picture ID handy. Requesting your medical data takes less than 3 minutes.
2

Consent to contribute to research with Morehouse Total Cancer Care & more.

When you request your medical records through Ciitizen, you’ll have the option of consenting to share your de-identified data to research. Select “YES” to contribute your data to the research this initiative is powering.
3

Spread the word in your breast cancer communities.

The more data contributed, the more information oncologists and researchers have in finding vital, life saving cures for Black breast cancer.
4
Stay connected to the initiative.
Join our private Facebook #BlackDataMatters community. We’ll let you know about upcoming webinars and resources available to your through this initiative. We’re here for you.
RESEARCH NEEDS YOU TODAY.

Through Black Data Matters we are creating access to research opportunities for our community. When you have all your medical data in your Ciitizen profile, not only is your data secure / private, you are then empowered to choose if you want to contribute to life saving research.

We’re democratizing precision medicine, providing access to life-changing research and clinical trials. We need everyone’s help. RESEARCH SAVES LIVES.

Play Video

Morehouse Total Cancer Care
Participants receive FREE access to genomic clinical sequencing. This is a valuable tool in your own care & to identify clinical trials for your consideration.


To learn more & consent to this study email: totalcancercare@msm.edu

TELL US WHY YOUR #BLACKDATAMATTERS

Tell us why you’re taking control of your data and joining the Black Data Matters initiative to receive a ready to share social post. Help us spread the word! 

#SOCIAL ASSET GENERATOR

1. COMPLETE THE SENTENCE
My #blackdatamatters because...

2. UPLOAD A PHOTO OF YOURSELF